Hats Off, Phoenix!

(c) Dr. Rajas Deshpande.

She had paralysis, over eight times in last six years. Lost vision few times. Lost balance many times. Even lost speech and bits of memory. Severe vertigo wouldn’t let her move for days. Many hospital admissions, many injection courses and tests. Barely two weeks ago, she had come to the OPD unable to walk at all. Yet, when she entered the OPD today, walking with a spring in her steps and a smile upon her face, the first thing she said was “I am joining my office tomorrow, Doc! You must convince my husband to let me. I am all fine now”.

Dinaz Dastoor, diagnosed with Multiple Sclerosis, a cruel, unpredictable and disabling disease of the brain and spine, sets an example of grit and positivity for patients and doctors alike! She refuses to be defeated by the disease, does not take any advantage or ask for sympathy, and deals with it like a phoenix: whenever it gets her, she rises above it and flies again.

She refused to take costly medicines with many adverse effects. She refused to give up her chosen duties: housekeeping and bringing up two daughters while fighting with this monster called MS. She attributes all her victories to an ongoing support and encouragement from her husband Rohinton Dastoor and their daughters “ Everytime I feel low, every time I am down in with disability, my husband sits by me and tells me that I am going to recover. He and my daughters have adjusted their lifestyles to accommodate the unpredictable attacks of my illness. Even when growing up, my daughters took care to keep troubles out of home, never argued with me. They all kept stress away from me. Without this supporting family, I won’t be as strong as I am today.. I am really lucky” says a smiling Dinaz.

She started working and is carrying on her job very well, of course her office and superiors have been quite accommodating, a rare scenario in India.

Her husband, one of the most polite and sweetest gentlemen I have ever met, handles all situations with a smile. The only time I ever saw him worried was when Dinaz had once developed a very severe attack and was paralysed below neck. “Do what is best for her, doc. I have complete faith in your decisions” he had said.

Today, he opened up when I requested their permission to share their beautiful story. “It is not that we didn’t have to compromise. There are many desires we had to curb: traveling, adventure sports, and what not. But I always tried to imagine myself in her shoes: what if this had happened to me? How would I have liked her to understand and accommodate my troubles? That way, it was easier for me to make decisions. There are more things we can do together even now than what we can’t. We always think about what we can do, never about what we can’t”. He had just said something that would put so many “MCP” husbands to shame, especially those who ill-treat their wives holding them guilty for their illness.

“A patient and her family only expect that the doctor spends enough time with us to listen to what we have to say, understand and address our concerns, and cares for us” Mr. Dastoor commented.

Meeting this smiling couple not only brightens my day, but makes me feel grateful that I can witness this happen, and write about it!

Hats Off to this beautiful couple, who define the spirit of love in its purest form.

(c) Dr. Rajas Deshpande

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