A Rare Case, Rarer Diagnosis

©️Dr. Rajas Deshpande

He lost his ability to walk. He had to give up working. He was carried around by family members. His spine had to be operated. Still he couldn’t walk. He didn’t lose hope. He kept smiling, searching for treatments. His legs had become completely stiff like wooden logs, and they jerked violently even with the slightest movement, even if someone touched them. He couldn’t separate his legs apart. He had to use pain killers that would cause acidity, and muscle relaxants that caused lethargy and drowsiness. All this usually depresses most patients, and some lose their patience with life.

But not Mr. Dnyaneshwar Patil. He was tougher than his problems.

“I never thought my illness was anyone else’s fault. I didn’t want to exploit sympathy by complaining about my troubles. I decided to accept my illness to fight it better. I wouldn’t tell my family about my suffering. They were always ready to help, but I changed my lifestyle and needs to suit my condition. They had their life too, I did not want to make it bitter with my troubles” said Mr. Patil, a school teacher from a small village Takarkhela in Jalgaon, recalling his struggle.

His son Girish told me “Baba never raised his voice or got angry with us. Even when there was extreme pain and disability, he chose to take rest and keep smiling. He continued to do what he could, and only needed our help when he couldn’t even stand up”.

After over eight years of this agony, Mr. Dnyaneshwar Patil had another major problem. His disc in the lower spine slipped and caused immense pain. The stiffness and pain in his legs worsened, it was impossible for him to move. He underwent a spinal surgery. That relieved his pain and he could resume some movement, but his earlier woes continued.

Two years ago, one of his blood tests revealed that he had an extremely rare disease called “Stiff Person Syndrome”. Due to a defect in the immune system, there was damage in his spinal cord, which caused the stiffness in his lower body. He was given controlled doses of steroids under supervision to reduce the activity of his immune system. There was a dramatic improvement: now he walks comfortably without assistance, and has resumed his full time job of a teacher.

Today he had come for a follow up. When I asked him permission for sharing his story of amazing courage and hope, he smiled and said “Every patient must understand that they must accept the illness first to be able to fight it. One must never lose hope. I found an answer after over 8 years of not knowing my diagnosis. Some doctors had told me that my problem was psychological, that it was due to stress. I knew it was not, so I did not give up. The reward of my hope is that I can walk today”.

We often get to learn from our patients. Hope is indeed an amazing prerequisite of a good life. We congratulate Mr. Dnyaneshwar Patil for his exemplary grit and pray for his best health always!

© Dr. Rajas Deshpande

PC Aniket Yadav

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