Tag Archives: Neurosciences

The Illiterate Man with Brain Tumors, Fits and Common Sense.

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The Illiterate Man with Brain Tumors, Fits and Common Sense.
 
“I have brain tumors. Is it possible to treat? Will I survive?” asked the worried man as his wife tried to hide her fear of the answer.
 
10 years ago, as I sat in a peripheral small hospital outside Pune, a simple couple had walked in, carrying their poverty in obvious signs upon them. Mr. Sakharam Pawar worked as a mason, mainly repairing foundation and floors. He had recently had a convulsion, and his Brain MRI had shown multiple tumors with swelling around them.
 
One of his relatives staying with him had had tuberculosis in the past. His clinical examination revealed signs of increased pressure within the skull. After a few simple tests, I told him that the tumors looked like tuberculosis growth (called tuberculoma or Tb Granuloma), and there was a good chance that they would respond to medicines, if he took the medicines regularly without missing for a single day. He agreed. An anti-convulsant was also started.
 
The course was prolonged, over a year, and the drugs were known to be notorious. Mr. Sakharam did not ask me a single question. When I updated him about the serious side effects like liver failure or vision or hearing loss that could result because of some his medicines, he replied “Doctorsaheb, I am sure you know what is best for me. If a side effect develops, it is my fate. I know you will help me there too. I leave all the choices to you”. I was amazed at this compliance and trust. He was barely literate (can only sign his name), but his choices spoke of an excellent common sense. In an age where even the well-educated resort to all kinds of Babas, Gurus, Herbals, Net claims, ,self-treatment and even black magic, this illiterate couple was making scientific choices!
 
He did not even seek a second opinion! A doctor’s responsibility multiplies when his / her patient completely trusts them, no doctor abandons the best interest of such a patient.
 
A year later, his Brain MRI showed that all the tumors had vanished, only a small scar remained. His medicines were stopped, except for the anticonvulsant which he will have to take lifelong. He takes this single tablet regularly, and we try and make it available for him at lowest cost by requesting the pharmacy. He hasn’t had any convulsion since many years now. He visits me once a year, and brings me words that make my day. This poor, illiterate man has defeated a high-fatality disease by making the right moves in time!
 
Today I asked Mr. Sakharam if I could tell his story to the world. He agreed. Then he mused and replied “I want to tell everyone that when I was first diagnosed with this dangerous illness I thought it was the end of the world. Then I discussed with my wife and we decided to fight this with proper treatment rather than superstitious decision making. The most difficult part was that I had to keep working in spite of severe headaches and the nausea caused by medicines, as we have no other source of income. But I am happy that I have defeated such a dangerous form of tuberculosis. I would like to appeal to people to go to the doctor in time, take scientific medicines and do not fall in the hands of quacks”.
 
Indeed, we see many cases of tuberculosis, tumors and so many other diseases of the brain that reach us too late to be saved or treated. Many (even highly educated) patients resort to unscientific options and waste precious time. Many a paranoid literates would have questioned every single thing right from the necessity of an MRI to the medicines used, and threatened their doctors with legal action for adverse effects of medicines. What this uneducated, illiterate couple demonstrated really questions whether education brings common sense to all.
 
Our medical director Dr. Sanjay Pathare assured Mr. Sakharam of all the help for the future.
 
The happy couple left with blessings upon their lips. A doctor’s day was thus blessed!
© Dr. Rajas Deshpande
 
PS:
Due permissions obtained from the patient for publishing this educational post. There are thousands of great doctors all over India, even in the biggest private hospitals,, who diagnose and treat poor patients without charging fees. The purpose of the post is to spread awareness that all brain tumors do not need surgery, that most tuberculosis cases can be cured completely, and also that with proper compliance, convulsions can also be controlled completely.

The Living Phoenix

The Living Phoenix
© Dr. Rajas Deshpande
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“Stop treating me as if I am only a woman!” she told the bank manager, who probably did not grasp the meaning of that sentence. Little did he know who he was dealing with.
Sharon Harmon Muir is a lady to beat most men. Right from Religion to Depression, she has fought her battles with the determination to win. She indeed won them, including her last battle with suicidal-level depression.
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4 years ago I met her with her husband Harry Muir, for some mild memory issues which turned out to be the symptoms of severe stress and depression. As she revealed the details of her life, I realized what an extraordinary life she had been living. When analyzing her own thinking and her art (painting), she said things that made me realize her genius.
I gave her a compliment I had rarely used: “You are one of the most brilliant minds I ever met”.She laughed aloud, looked at her husband, and winked “I told ya!”. Mr Harry was only too happy and proud.
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Sharon was born in South USA to parents who were mill workers. She started her theatre performances at the age of 13. She sold her first painting at the age of 15. She was actively involved in civil rights movement. Once while service in the church, a black couple was denied entry in the church. Sharon quit organized religion that day, protesting against racial prejudice.
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She went to an all-male institute of design and technology, University of North Carolina and later started teaching men at the same center to use power tools and build theater sets (That was in the 1960s!). She studied various art forms, ballet, composing music, painting and much more, also working as an electrician.

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She says: my job profile was easy: whatever anyone could not do, I offered to do it for them. Working at such odd jobs, she met Harry Muir, who was a political protester within the US army. As Harry was jailed, Sharon’s family opposed the marriage. She was even labeled “carni-trash” then. Together Sharon and Harry worked as college professors, musicians, fine artists, magicians, and stood for each other. Sharon got an excellent corporate job, so Harry decided to complement it by choosing to be a house-husband, cooking and serving and looking after their daughter, and when the daughter went to school, he spent his time as a street singer.
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At the age of 50, during menopause, the first attack of depression struck Sharon. In her own words, “It wasn’t me who was sad and suicidal, it was like someone else within me. I fought those thoughts, I knew I had to overcome this”. She developed severe panic attacks that prevented her from going out of their home. So she trained a Scottish terrier who would stop the traffic for her, take her to a safe place and then find Harry!They reached India in search of spirituality, finding it at Meherabad, and settled there. She continued to work as a painter and musician. “I was lucky that I could be the head of the family” she comments, although every time she speaks of Harry now, her voice becomes tender.
Once on a flight from Atlanta to Paris, Harry collapsed and was resuscitated. He was shifted to an ICU in Paris from the airport, and was diagnosed with pulmonary fibrosis (shrinking and progressive failure of lungs) of unknown origin. A few weeks later, they returned to India. In January 2016, Harry suddenly collapsed and passed away while in a hospital. Sharon kept on resuscitating her life partner of 50 years, till the hospital staff arrived after 8-10 minutes. She cannot forget that trauma.
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With this loss, her depression resurfaced again, stronger than ever.
The worst loss in life is not death, it is the loss of love. Once more, suicidal thoughts and severe depression engulfed Sharon. To be left alone in a foreign country at the age of 67 is not easy.
“My belief system is very strong. I know my intelligence is above average, so there was no reason I couldn’t do everything I wanted, if I just put my mind to it” she tells how she decided to overcome her depression. “I read about it all I could, tried to get help, and got it”. She is thankful for getting good medical help in India, although she adds with a wink “I didn’t want a doctor who pats my back and laughs aloud telling me not to worry. I wanted a doctor who understands me, my illness and my worries as well”.
After Harry’s death, she had to clear a lot of legal hassles and banking formalities. Her daughter helped her there. When one bank manager tried to behave high-handed thinking that she’s just a woman unable to cope up, she told him : “Stop treating me as if I am only a woman!”.
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When she visited me recently, she laughed a lot and told me: “This time again, I have chosen to defeat my depression. I will never give up. Back to life now”.
I usually keep busy, but when some patients talk, I want to listen to the beauty they create in my life. They expand my mindscape. When I asked Sharon what was her favorite subject for painting, she answered with a mysterious smile: “I paint the colors of the spirits of places”.
As I drank in the beauty of that sentence, I realized that the soul of this extraordinary woman can only have one title: “Phoenix”. The legendary bird is not imaginary, so long as we meet people like Sharon. This great magician called nature has given us the magical ability to be everything we want to be, to be happy, to win over any challenges we might face, just with a small trick: wanting to do it.
Sharon is an extraordinary example of that magic.
© Dr. Rajas Deshpande
Thank you, Sharon Harmon Muir, for the permission to share the story of your extraordinary life.

Please share unedited for spreading awareness about fighting depression.