Tag Archives: seizures

The Epic Struggle Against Epilepsy

The Epic Struggle Against Epilepsy

(C) Dr. Rajas Deshpande

In a war-torn city, she kept on having fits almost every other day: convulsions and seizures of different types. 21 years old and home-bound, she had suffered with epilepsy since childhood. Dreams of a beautiful life that must adorn the life of a young woman were shattered due to a devastating and humiliating illness.

Her elder brother could not bear to see her suffer. He decided to take risks and enquired. Someone told him to take his sister to India for treatment. The airports in his country were destroyed or closed. All doors to India appeared locked.

Without any clues about future, he took her by sea to a nearby country Djibouti, a small African country. From there they traveled to Ethiopia. Then to Kenya. Finally they reached Mumbai and searched for the lone contact they hoped to meet: Mr. Abdul Aleem Alakeli, who works free to help patients. That was two months ago.

She reacted badly to two of the best medicines used for treating epilepsy, but their faith and determination were extraordinary. The brother and the sister had made a final decision: come whatever may, they wanted to defeat epilepsy.

Today as they left with complete control of seizures, I told the sister what she already knew: that she had an extraordinary brother. I congratulated her for her strong will power too.
Her brother was smiling after a long time, and her pride was obvious.

We wish her and her brother the most beautiful and healthiest life ahead. May God bless them and ensure their safety on the way and back home.

(C) Dr. Rajas Deshpande15622112_1172439906184669_2495525607074222032_n.jpg

The Bloody Negligence on Indian Roads

The Bloody Negligence on Indian Roads
(c) Dr. Rajas Deshpande

There are over 5 million patients who suffer from epilepsy in India, @ 60% do not get correct treatment (various reasons). Over 4 million of these are adults. Indian law bans anyone with even one seizure from driving (lifelong). While one sympathises with the patients and all attempts must be made to treat and rehabilitate them, one cannot neglect the risk to life: their own and many others. So there are over 4 million potentially unfit / dangerous drivers in India on roads, many with heavy vehicles, some with driving as their profession. Only the aviation industry insists upon superficial screening for epilepsy. About notifying RTO by the doctor, given the illiterate + politically backed violent lawlessness of most Indian population, the doctor’s life is at risk in doing so. Most Neurologists / other specialists educate the patient about not driving after this diagnosis. Patients still continue to drive (and parents / relatives allow them to do so), with an excuse “How else will I work?’ and other illogical arguments. If we see the pattern of heavy vehicle accidents, many are in the early morning hours (lack of sleep may precipitate seizures), and are described as “sudden loss of driver’s control over the vehicle”.

Many other medical conditions are incompatible with driving, but the drivers carry on nevertheless.. Who is responsible for the thousands of these accidents and hundreds of deaths they cause? Is this not gross open negligence, with proof everyday?

(C) Dr. Rajas Deshpande